So I've started going to the Chiropractor. The first visit cost me $59, the second was $50. Each visit after is $45. I have to go twice a week, then gradually put on monthly for maintenance.
I submitted my receipts from physical therapy for reimbursement, and mentioned I would be doing the same with my receipts from the Chiropractor. My assistance program needs a letter from the doctor stating that I had to go to PT because of my Gaucher's. I don't have a letter saying I had to go to PT becuase of my Gaucher's because no one has connected those dots yet. So now I have to try to convince a doctor that my back problems are related to my Gaucher's even though there was "no Gauhcer activity" in my lower back. Why can't we just say everything is Gaucher related until it is proven otherwise? There is still so much that we don't know about this disease, we shouldn't have to rule things in. We should rule things out. I'm 34 and have lower back arthritis and can't sit, stand, piss, sneeze, cough, or wipe myself without pain. I had to quit bowling, which I loved, becuase of the pain. I can't get an injection to relieve the pain because there's a high risk of internal bleeding from my Hemophilia which could cause nerve damage and paralysis. And now I have to try to link my medical conditions to Gaucher's to get reimbursed by my assistance program? Seriously? Where are we supposed to come up with the money to treat our diseases and ailments from the diseases? How am I supposed to come up with $90 per week for treatment? I had to quit PT because I couldn't afford the $60 per week it was costing me, and now I have $90 per week. I haven't had a pay increase in over 2 years, yet my medical bills had no problem increasing. Who is out there to help me with all of this? I have no one to talk to. I have no one to help me pay for this. I have no one who understands that can help. What am I supposed to do? I mean really? I'm living with horrific pain daily which affects my mood and work. I have to take time away from work to stretch my back or go to the doctor. I can't focus on anything because the pain takes my focus. I can't sit and watch TV without being in pain.
No one can give me an answer on how to make the pain stop. All I can do is pop pills and exercise. My orthopedist recommended going to the Chiropractor since the PT he recommended didn't work. It's really hard to exercise the part of your body that sends you into lightning, electric, star-seeing pain anytime you sneeze, let alone try to bend over. The stretches just seemed to make the pain worse.
So not only am I in excruciating pain, but now I have to figure out how to pay for everything.
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